Waiting for news of committee's decision

Well, I've sent off letters to the PCT and am hoping that they will take into account of my letters. I managed to get support from my local doctor and possibly the NCIUA. However didn't get any help from the Social Services, much to my dismay and disappointing really.

Well it is now the beginning of August and the 7th August is when the decision will be made although I doubt that I'll for a few days as the decision will be sent by post to the SOECIC. I shall wait with abated breath....again!

However, in the mean time I'm focussing on getting ready for my Summer hols soon and this will be a very good break from all the stress of worrying lately.

Weather has been so awful but it looks like there is light at the end of the tunnel now as all the floods are clearing up but has left behind a huge shocking clearup costs! Hope the government will help....be interesting how they will help!

Exceptional circumstances committee's response

Well, I finally got the response earlier this week and this is the following comment that I got from my cochlear implant team, says:

We have just heard from the PCT - unfortunately they have misunderstood
our request and your case will have to go back for consideration at a
meeting scheduled for beginning of August.  We have sent further letters
of clarification today.

We will be in touch again as soon as we have some more news for you.

Hmm, my reaction to that was that I was very angry and found out from someone that the best way to get support was to contact Social Services, NCIUA and the local GP.  So I've booked an appointment with the local GP and written a letter to Social Services (Hearing & Vision team) and emailed the NCIUA and go from there.  I'm hoping for as much support as possible as it is very stressful for me to keep an eye on my kids all the time as cannot hear them, such as potty training, running around, falling over, learning to crawl, all sorts of sounds that I'm unaware of and it pains me that I'm missing out so much.

I'm hoping to get as much support for the meeting begins in August.

Countdown to Committee's Decision Day

Well it is 27th June and only 6 days to go before 3rd July comes! I've had so many thoughts about the bilateral cochlear implants going around in my head ever since I was told that my case would be put before the Exceptional Circumstances Committee to see if they will approve funding for me to have simultaneous bilateral implants. I do have strong feelings that it will probably be not approved as the NHS have got themselves into a mess. At the same time there will be no smoking from 1st July in enclosed spaces! That will be good news for us as I dare go to places that allows smoking because of my boys. I'm counting the days now to 3rd July!

Possible bilateral approval

I'm hoping that I'll get approved to have bilateral implant as it is a rare chance to be offered this to me. It was not an easy decision to decide whether I want to have bilateral implants as have been used to just having one ear throughout my life to hear with. The offer came up, earlier this month in June 2007, whilst arranging my reimplant operation date. I was surprised. It is now going before the Exception Committee to see if I'm suitable for the funding. Fingers crossed!